SCHEETZ FAMILY

I have not done an entry in a while because to be completely honest I have not wanted to share in our latest news. Mikayla had a urodynamics test done almost two weeks ago. This test checks to see if her bladder is emptying and filling up and functioning like it should. Well, to our total shock... Mikayla's is not working properly. This news felt like a punch in the face for us. Things seemed fine and we had started the potty thing. Most people with spina bifida have bladders that don't function properly, we just thought that Mikayla was going to be the exception. What is happening with her bladder is that it is only filling up halfway and then only emptying half of that... so she has a lot of stuff sitting in her bladder. This is causing there to be extra pressure on her kidneys which could eventually cause her to need dialysis. The solution to the problem is to catheterize her every 4 hours and have her on two types of medications. The two exceptions to the 4 hours are when she is at school and sleeping at night. The first few days were very hard for me. I know that Mikayla has differences from other kids but I wanted this to not be one of those. I wanted her to be able to go to the bathroom like every other kid. Hasn't she been through enough??? That was the mommy in me but the Christian and Believer needed a little bit of time to come out. I know that there is a reason for this... God's ways are not our ways. I cannot sit a dwell on this anymore... it is the place where we are for now and that is just the way it is. For now. Not for one second do I believe that this will be forever!! Does that mean it is not hard on me... no way!! But it helps to believe in God and believe that there is a higher purpose for EVERY single trial we go through. So for now, we are just doing this thing and taking one day at a time.

Her surgery has been changed... it is now Friday, October 2nd at 10am at Vandy Children's Hospital.

I have put some random pictures on here.